Office of Responsible Research Practices
The Ohio State University

ORRP News

Privacy and Health Research in a Data-Driven World (2019 OHRP Exploratory Workshop)

Posted: September 11, 2019

The Office of Responsible Research Practices, Office of the Chief Information Officer, and the Center for Clinical and Translational Science are sponsoring a viewing session for the Office for Human Research Protections’ exploratory workshop on topics related to human subjects research and privacy considerations involving the secondary analysis of health data.

Agenda

Session I: Is Privacy a Casualty of Advancing Research?

The goals of this session are to explore the problem of privacy protection in a data-rich world, the tensions that exist between the societal good that could come from big data research and the real and perceived risks to individuals, and the public’s perspectives about broad data sharing.

Session II: Approaches to Protecting Privacy & Confidentiality

The goal of this session is to explore the challenges of privacy protection for health-related big data research conducted on a variety of platforms and in various settings.

Session III: Protecting Privacy & Confidentiality: A Shared Responsibility

The goals of this session are to discuss some of the challenges facing IRBs and institutions in the review of proposed data sharing options for research that falls under the Common Rule, and explore ethical oversight of big data research that falls outside the scope of the Common Rule.

The viewing session will be held on Thursday,September 19from 8:15 a.m. to 4:15 p.m. in Room 200,Prior Health Sciences Library, 376 West Tenth Avenue. A working lunch will provide stakeholders with an opportunity to discuss privacy implications and future strategies at Ohio State.

Category : Educational Offerings / IRB / ORRP